Sunday, 24 August 2014

Sunday Spotlight - 24th August 2014

In my life this week…


So, this week my GP rang saying she’d like to see me. I always get a bit worried when this happens but it turned out to be a rather useful appointment. I’m meant to be referred to an EDS Gastro specialist in London, but my GP and consultant are arguing about who it should be to refer me, which is very frustrating. Apart from this though, we made some progress on a couple of other problems I’ve been having. My GP is asking my rheumatologist for some advice on how she should treat my osteopenia (basically I had a bone scan and my bones are thinning too quickly, but because I’m so young for this to be happening my GP is unsure what to do with me!) She is also in contact with a urologist to get some advice on another issue, but the main outcome of the appointment was her referring me to see a cardiologist because she thinks I may have a condition called POTS (Postural Orthostatic Tachycardia Syndrome). Along with my diagnosis of EDS-Hypermobility Type, it would explain a lot of my symptoms, so I’m hoping it will be a positive move forward. There isn’t a cure unfortunately, but at least it would make sense of my symptoms.

New make-up

On Wednesday my Mum and sister took me on a little shopping trip to Reading. We managed to get a wheelchair on and off the train, which made the shopping trip possible for me thankfully. I had a little list of things I’d like to look out for in my head and one of the places I wanted to visit was House of Fraser’s beauty department. First we headed to the Mac counter, where I purchased the beautiful Dazzleglass in Extra Amps. It’s so pink and pretty and it smells of vanilla – I’m in love! After chatting with the lovely people on the Mac counter, we headed over to John Lewis and the Bobbi Brown counter. A lovely lady, who gave me a little make over with some of the products I had wanted to try, served me. I came away with a new colour corrector, concealer and brush – a little more than I’d planned, but it was all so good! I’ve made a video about the concealers actually, so watch out on my YouTube channel for that being uploaded!

The seaside!

I have been desperate to visit the seaside this summer, but finding someone to take me, as well as my health not playing ball, has meant it hasn’t been possible. However, my youngest sister needed to go to Bournemouth beach to do some Geography coursework, and she very kindly said I could tag along if I felt up to it on the day. So, Friday came and the sun was shining. I didn’t feel great but I was determined not to miss out on the opportunity to go. I’m so glad I managed it – the weather was perfect. My Dad wheeled me up and down the promenade and it was gorgeous having the sea air on my face and seeing the colour spectrum of beach huts lined up. We even got ourselves some New Forest homemade ice cream, which was delicious, before heading back home through the New Forest, seeing lots of adorable ponies.

What has grabbed your attention this week? I love hearing about people’s new discoveries and you may end up sharing something that makes it onto my list next week!


  1. Sounds like you had a productive week! I'm glad to hear that you may have some answers about your illness. All the best with it! shopping and the beach sounded like fun! Yay for being able to get out. I hope you have a lovely week.

    Lennae xxx